In Medical Center of JSC «Admiralty Shipyards» took place the attendances of the patient school for children with primary immunodeficiency (PID) by Welfare Fund for children and adults with poor immune functions «Sunflower».
In the regular meeting of the patient school took part: Аnna Kozlova, professor, Candidate of Medical Science, scientist of department of optimization of treatment of immunodeficient deseases of Federal State Budgetary Institution «National Medical Research Center for Pediatric Hematology, Oncology аnd Immunology named after Dmitry Rogachev» of Ministry of Health of the Russian Federation; Irina Backradze, the managing director of Welfare Fund “Sunflower”; Elena Kaik, Chief Doctor of Medical Center of JSC «Admiralty Shipyards».
The importance of the measures for adaptation of the children with PID underlined Elena Kaik: «According to some reports, at present we have in Russia a few thousands of little Russians with undiagnosed nasty forms of primary immunodeficiency. But for those who was correctly diagnosed a normal life can be provided. And we are glad that we have the capacity to pull our fair weight to improvement of quality of living of our little patients and their parents. I am confident that the meeting in our medical center will become another step for rather long and happy life».
«The schools of «Sunflower» – is the place where the doctors, the patients with PID, the Fund specialists can communicate and work together as one team in maximum convenient and efficient format, – specified Irina Bakradze. – we are thankful to the Medical Center of «Admiralty Shipyards» for assistance and performance of regular school in Saint-Petersburg. We hope for long cooperation in treatment of the patients with PID».
Within the framework of the meeting hold in the Medical Center «Admiralty Shipyards» the participants interacted with leading experts–immunologists, took opinions of a lawyer and a psychologist of the Fund. Since 2016 the patient school program is successfully realized in Moscow, Saint-Petersburg, Rostov-on-Don, Samara, Saransk, Ekaterinburg and other Russian cities.
Primary immunodeficiency – a disease of immune system with hereditary pattern. In accordance with medical statistics, such defect appears in one child out of ten thousand. Approximately in 80% of the cases by the time of diagnostics of PID the patient age does not exceed twenty years. According to the immunologists’ there are about 2000 patients with PID in Russia and also about 13000 persons are not aware of their diagnosis.
The Welfare Fund for children and adults with poor immune functions «Sunflower» is the only professional non-profit organization, which deals with the problems of patients with PID in a consistent manner.
Reference: Branch « Medical Center of JSC «Admiralty Shipyards» – a multipurpose health care center, meeting current standards, it is capable to accept daily up to 1200 medical outpatients. In the Center are functioning 52 divisions, including surgical and medical hospitals, and also own clinical diagnostic and bacteriological laboratories. The facilities of the Medical Center allow to perform in full scope outpatient, in-patient examinations and treatment of patients. The number of the clinic personnel is over 300 persons. In 2018 will be marked 110–th anniversary after the day of arrangement of clinic care for employees of Admiralty Shipyards.